https://www.dysunderstood.com/blog daily 0.75 2025-01-03 https://www.dysunderstood.com/blog/katestory monthly 0.5 2023-11-28 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9b4fac2c-e3ea-4b48-a6b6-5df7cc3fed0a/IMG_5859.jpg Blog Posts - Finding New Strength “I find strength in the chronic illness community that has existed and fought before me,” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/1ccfa190-1982-4b84-a77f-177ca6e9a83b/IMG_73198236F769-1.jpeg Blog Posts - Finding New Strength - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/1a665587-2791-4834-9041-0dd695a849c4/IMG_2327.jpeg Blog Posts - Finding New Strength - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/5a7dea4b-15d6-446c-89f9-a21997cfe9f1/DSC_1286.jpg Blog Posts - Finding New Strength - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/4705f58a-d05f-422d-a7e7-374bddcfa987/IMG_9405.jpg Blog Posts - Finding New Strength - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/corystory monthly 0.5 2023-11-28 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/725abfc7-56e6-41b6-8ebb-0614791a58ef/Cory+Anderson+HS+3.JPG Blog Posts - Embrace the “I don’t Know” “So often, the world talks about illness in binaries- you’re cured or you’re not, the bone is broken or it’s healed, you’re healthy or you’re sick. People with chronic illness have learned how to live in the in-between” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/66189bb8-a12d-47ec-8882-bc123bcc46e2/Cory+Anderson_Photo+3.JPG Blog Posts - Embrace the “I don’t Know” - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/30f2da36-c385-47d0-a6cb-23aa4e68a42b/Cory+Anderson_Photo+2.JPG Blog Posts - Embrace the “I don’t Know” - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/allisonstory monthly 0.5 2023-07-16 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9437decb-274e-4b5f-a355-58e2babcbb1c/6.jpeg Blog Posts - Belonging. “…listening to my body and doing what’s best for my CFS and listening to my heart and doing things that fill my soul…” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/5a30328f-b1a8-44b2-8dc1-66f6f0ab69c2/1.jpg Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/2f299e4a-ba73-4b5d-8ec2-1b753aa875cf/2.jpeg Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/ccad99eb-a7f6-4299-81ee-ce63251688b3/4.jpeg Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/ef6621a0-01e3-437d-a2f5-39318214cfd4/6.jpeg Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/0b935e6b-d019-4dce-b5ab-ff7fe9a3b1af/7.jpg Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Belonging. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/samstory monthly 0.5 2023-07-06 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/d626c627-b1d4-4285-bd97-c51a2869b259/Image.jpg Blog Posts - Swimming Upstream “What I learned living in a less reliable, more complex body is that it is more important to understand myself than it is to be understood by others.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/97c386c8-3259-4bb7-86af-f36547df8410/Image+%281%29.jpg Blog Posts - Swimming Upstream - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/be306d8d-f1ff-4d79-acd7-507ed023b141/Image+%282%29.jpg Blog Posts - Swimming Upstream - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/allystory monthly 0.5 2023-06-30 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e48259aa-5a83-47dc-ad4b-b4e93dac4b98/ally+selfie.jpg Blog Posts - Purposeful. “My life is slower but more purposeful…My definition of success has changed from being able to do it all, to being able to do what’s best for myself.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/43c57fb5-6dd2-416c-a761-c450e7dcf255/unnamed.jpeg Blog Posts - Purposeful. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e7d610ed-d613-4b6f-ab0e-0cb87f537adc/unnamed3.jpg Blog Posts - Purposeful. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/fa80bd09-7360-4560-a0b3-8aedfe73b5bc/unnamed2.jpeg Blog Posts - Purposeful. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/christinestory monthly 0.5 2023-05-10 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c29f87de-2f14-4d2f-8e67-ea577de7b230/IMG_8287.JPG Blog Posts - Keep Moving Forward. “I am capable of so much even if it’s not easy. In fact, I am capable of more, because on top of what I’m doing, I’m doing it with POTS. And so can you.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/4c79c710-a472-45ef-8ae3-f4d899b7c53a/IMG_3987.jpg Blog Posts - Keep Moving Forward. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/667ee1fa-2a98-4627-8a89-5ee3c77b05aa/IMG_6381.jpg Blog Posts - Keep Moving Forward. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/11aa4cfc-23de-48d9-a66d-270900e19b4c/IMG_9300.jpg Blog Posts - Keep Moving Forward. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/24885533-8ed5-4d3a-90ba-5383561db8ac/IMG_1062.JPG Blog Posts - Keep Moving Forward. - Make it stand out The Adventure Continues https://www.dysunderstood.com/blog/alexstory monthly 0.5 2023-02-28 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9fef1d3a-bfd8-48a8-86c9-c15d79031701/Whitagram-Image.jpg Blog Posts - Life has changed…and so have I. “I have come on further than I believed was possible at the time of diagnosis.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7b51ed31-c141-4645-998a-d5d5e83abb05/IMG_6473.jpg Blog Posts - Life has changed…and so have I. - Make it stand out My first overnight stay in hospital whilst still seeking a diagnosis. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/d2747a7c-4114-4e8c-b4e6-827cc2b48f7d/IMG_0790.jpg Blog Posts - Life has changed…and so have I. - Make it stand out A trip to London awaiting testing with a POTS specialist. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c216a02e-41d1-4702-b9e7-1214d544b4be/IMG_4071.jpg Blog Posts - Life has changed…and so have I. - Make it stand out After taking part in the Parish walk where I walked 30km to raise money and awareness for POTS UK. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/34711f05-e469-4211-9aec-23e9e97b6085/F380F558-6D21-4A59-8978-E5114A114692.JPG Blog Posts - Life has changed…and so have I. - Make it stand out The first time I was able to run for more than a few minutes again and manages 1.5 miles https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Life has changed…and so have I. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/cailynstory monthly 0.5 2023-01-16 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/3aaf9fcc-7ec7-4b14-a93d-fd78cd2dd30b/69402882_2469209700031413_6927688875858984960_o.jpg Blog Posts - One Step at a Time - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - One Step at a Time - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/olgastory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/f8b2cd74-5fcc-46cf-9c2a-d332944b1d37/IMG_6794+copy.png Blog Posts - Seven Years of Searching. I get asked all the time, “How did this suddenly happen to you?” No it didn’t just happen, I was just good at hiding it. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/f333bd8e-b618-4d4e-a463-522d28e1cad3/3487BED0-D1A8-42C7-B142-A0EEF7F864C5.JPG Blog Posts - Seven Years of Searching. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/4fc9ba51-e0f1-4aa5-923c-483515c3f72e/IMG_3475+copy.jpg Blog Posts - Seven Years of Searching. - Make it stand out Here I am, hunched over, taking a needed rest at Disneyland, only shortly before I was laid out on a bridge in the park. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/3845b4d5-7e47-4d80-9a12-ac1480b840bf/IMG_3332+copy.jpg Blog Posts - Seven Years of Searching. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Seven Years of Searching. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/grounded monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/b703df3b-44f8-47c9-9807-f74cb83af7b9/IMG_0902.jpg Blog Posts - Grounded - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c5287f01-2695-4ae7-afb0-a528144dabc4/IMG_9759.jpeg Blog Posts - Grounded - Make it stand out ER visit- February 14, 2020 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7f0a74fb-ef45-4dcf-87b5-174f5d56349d/IMG_1703.jpeg Blog Posts - Grounded - Make it stand out After field-day tug-of-war https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/a7d73b03-5898-477b-9ac3-2b9b3c365e5d/IMG_3907.jpeg Blog Posts - Grounded - Make it stand out Me running the Race to Beat POTS 5k … before I developed POTS https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Grounded - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/meltdown monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/6462f0ea-1606-44a4-ac70-b1b0917bff29/_L3A8170.jpg Blog Posts - It’s Okay to Have a Meltdown - I recently had a big one. There is a saying, “don’t cry over spilled milk,” but we all know that the tears that flow aren’t simply about the milk. The tears are the release of the stress, worry and burden we carry every day. We don’t have time to meltdown anytime something frustrating happens. But sometimes, after things have built up, you have to. And in my opinion, you should. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - It’s Okay to Have a Meltdown - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/gracestory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/31bb0ffe-019d-4606-9e65-83bc8f6460d7/IMG_7253.jpg Blog Posts - In That Moment, I Was Free. - “The person that climbed out of the pool for the last time was me, Grace Ariola. Just Grace. And I was free. .” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/da405a61-00ab-4e18-a6b0-f68c6b7b92cb/IMG_1273.JPG Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9f327ebc-538e-4532-806d-0fbefd29f635/IMG_0760.JPEG Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/6f2919fd-1b2f-4180-b963-fb5206046703/%23dead.jpeg Blog Posts - In That Moment, I Was Free. - Make it stand out A picture snapped by my teammate before morning practice- it is easy to see why they thought I was being dramatic. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/0489347c-69fb-43b0-b1fb-41195fcf6eec/IMG_1274.jpg Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/d195ea92-035f-4df3-89f6-e29f099914ff/IMG_5C4F7F188944-1.jpeg Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/99809ad6-982c-4618-a4f9-c29d7c6829cf/IMG_1669.JPEG Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/433f2cd4-ce18-4fa2-a839-6ce57dc33ffb/FullSizeRender.jpeg Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e93d3b28-6aff-4e60-850b-33d38716520a/IMG_9175.JPG Blog Posts - In That Moment, I Was Free. - Make it stand out This is who I thought of as I wrestled with past suffering as a reason for present and future suffering. I felt guilty for giving up on her dreams, but she wouldn’t want me to be miserable. She wouldn’t want this pain for me. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - In That Moment, I Was Free. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/jackiestory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c336da86-27f5-48cd-b921-198772e6bad3/IMG_6294+%281%29.jpg Blog Posts - Awareness is the Answer. - “The pediatrician wasn’t aware of what POTS was …but … She didn’t need to be an expert. She just needed to be made aware. Awareness is so important in order to get proper care. And I’m so thankful my child won’t have to fight for decades to get help.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7e73a7d3-a253-435f-b645-0e6d536952f0/IMG_1374.jpg Blog Posts - Awareness is the Answer. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Awareness is the Answer. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/alexastory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9ab6fccc-d9a5-464b-8d3d-1221be20b256/IMG_0832_Original.jpg Blog Posts - Look How far I’ve come - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7c72e442-0601-403e-a18a-d67d5f33fad2/IMG_4653.jpg Blog Posts - Look How far I’ve come - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/dad157ea-e349-40b9-9fd8-21632ecf142f/IMG_8482_Original.jpg Blog Posts - Look How far I’ve come - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Look How far I’ve come - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/corristory2 monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/90433642-0e71-4454-a35b-64940e7ae0e3/corri+.jpg Blog Posts - Mental health and Dysautonomia - “If you feel like you aren’t being listened to… find someone that will go out of their way to research your symptoms until they can come to a conclusion that will help you make accommodations in your life. That is your right as a patient!” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Mental health and Dysautonomia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/johannastory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e76f7251-aaf0-4fdb-835d-37dcd52b41a9/IMG_3308.jpg Blog Posts - Hope in Healing. - “Seek gentleness in everything you do – Be gentle with yourself when you feel terrible, when you feel great, when you did too much, when you skipped something… No amount of gentleness and self-compassion is too much.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/79e30f28-e2cc-49ee-ae31-5a4ef87a82d8/IMG_0516.jpg Blog Posts - Hope in Healing. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Hope in Healing. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/corristory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/29d148c4-3b1f-4bf2-bd54-86264221615a/corri+1.jpeg Blog Posts - Dancing with Dysautonomia. - “It is a gift to be able to stand up and brush your teeth every morning. It’s a gift to be able to go holiday gift shopping for your family, and it’s a gift to do all of the things that you love to do.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/a7b91078-2ac6-4294-a1f9-ef8b7fed7391/corri+2.jpg Blog Posts - Dancing with Dysautonomia. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Dancing with Dysautonomia. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/partners monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/6211e1ee-c0c5-4ca8-b103-2d3faa16cd2d/dysunderstood.jpg Blog Posts - Our Partners. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/d2aee388-eb1b-468d-8ba3-bdc4556a9204/IMG_4047.jpg Blog Posts - Our Partners. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Our Partners. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/71b28e89-51cc-4970-8d3e-48fa369ef8f8/IMG_5288.jpg Blog Posts - Our Partners. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/61c2353d-c6af-4d91-a64a-31fafa08841e/releaf+pack.jpg Blog Posts - Our Partners. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/danielastory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9dd9424e-3e25-49a9-83e8-dd83827f9669/Screen+Shot+2022-07-27+at+10.54.30+AM.png Blog Posts - I Wouldn’t Change a Thing. - “I was fighting to be understood and get the right help.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/960e2ede-e5c0-41b8-98e9-d6642a3255dc/Screen+Shot+2022-07-27+at+10.54.52+AM.jpg Blog Posts - I Wouldn’t Change a Thing. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/aef0c109-395a-4b9c-afbf-02affe48c6ce/image0.jpeg Blog Posts - I Wouldn’t Change a Thing. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - I Wouldn’t Change a Thing. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/zackstory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/1cb5be8b-4425-4ab6-992b-deb0b0c71d14/image0+%281%29.jpeg Blog Posts - I Can Get Through Anything, Big or Small - “For anyone living with a chronic illness, not just Dysautonomia, make the effort to try and be positive. If you are willing to search for them, there are so many resources available.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/138cfdba-a655-4aee-addc-58dd02bee5a8/image1.jpg Blog Posts - I Can Get Through Anything, Big or Small - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - I Can Get Through Anything, Big or Small - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/dianastory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/beae503c-a842-4fe2-ab23-282528510861/DIANA.jpg Blog Posts - You are not alone - “What you are feeling is real and it is really hard, but there is hope and as much as it feels like it, you’re not alone.” https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - You are not alone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/selfdyscovery monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/148e9d68-3bf9-49ba-95c8-f89b0cf0e8e3/Screen+Shot+2022-07-05+at+12.32.37+PM.jpg Blog Posts - Self Dyscovery. - Make it stand out Me, on the right, on a field trip with my classmates to UCI medical school, being inspired at an early age. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/73805331-b9c7-4cd2-9854-f04360b7edf4/IMG_5476.JPG Blog Posts - Self Dyscovery. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Self Dyscovery. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/dysisreal monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/06dc87ca-f3cc-450e-af70-80538a6c12c8/images+%284%29.jpeg Blog Posts - dys is real, dys is me. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/434b8466-eba4-49a4-b3c6-c6b990f4c00c/IMG_0251.jpg Blog Posts - dys is real, dys is me. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/f9e67e9c-6527-4fd3-8593-f4fadce4a236/IMG_4536.jpg Blog Posts - dys is real, dys is me. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - dys is real, dys is me. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/mystory monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/198f9de7-724f-49a2-9119-2cf945aa2afd/IMG_0125.jpg Blog Posts - My story. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/d15cd334-5bb0-463f-92bd-d89d697441cd/IMG_0702.JPG Blog Posts - My story. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7cc221b6-ca63-455a-b167-8b2831537b95/IMG_4760.jpg Blog Posts - My story. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/fce06123-dea8-4d50-8bca-66467114c019/IMG_3026.jpg Blog Posts - My story. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - My story. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/hello monthly 0.5 2022-12-31 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/62a89a36-fd04-4ee7-ab1d-4921a70c99ed/_L3A7129.jpg Blog Posts - Hello. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/40000da5-bcf1-4928-b0ba-75dfc32bf898/Screen+Shot+2022-05-31+at+10.06.18+AM.jpg Blog Posts - Hello. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/2df69990-6573-461e-9ec4-ad0bb1d4912a/Dysunderstood-logo-bw-png.png Blog Posts - Hello. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Blog Posts - Hello. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/blog/category/Recipe monthly 0.5 https://www.dysunderstood.com/blog/category/Wellness monthly 0.5 https://www.dysunderstood.com/blog/tag/chronic+fatigue monthly 0.5 https://www.dysunderstood.com/blog/tag/chronic+illness monthly 0.5 https://www.dysunderstood.com/blog/tag/Ella+Eastin monthly 0.5 https://www.dysunderstood.com/blog/tag/dysautonomia monthly 0.5 https://www.dysunderstood.com/blog/tag/Chronic+Fatigue monthly 0.5 https://www.dysunderstood.com/blog/tag/Dr.+Peter+Rowe monthly 0.5 https://www.dysunderstood.com/blog/tag/Vitassium monthly 0.5 https://www.dysunderstood.com/blog/tag/ME%2FCFS monthly 0.5 https://www.dysunderstood.com/conference2023 daily 0.75 2026-03-24 https://www.dysunderstood.com/conference2023/reliefband monthly 0.5 2023-08-01 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/276d38b8-9793-4eba-aae3-c9cec50c0884/Screenshot+2023-08-01+at+10.36.39+AM.png Conference 2023 - Giveaway: Reliefband - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/conference2023/drjennifercurtin monthly 0.5 2024-12-21 https://www.dysunderstood.com/conference2023/vitassium monthly 0.5 2023-08-01 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/e8cb6562-e7fd-4fc7-91f2-02f0919ef934/Vitassium_Logos_RGB_White.png Conference 2023 - Giveaway: Vitassium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/conference2023/releafpack monthly 0.5 2023-08-01 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/7f3cf377-62d5-4fcb-8a61-94a473cd9b5d/Trimmed+Green.png Conference 2023 - Giveaway: Releafpack - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/1690911801363-I7006QK5S7MGDLIGLV1E/IMG_7228.jpg Conference 2023 - Giveaway: Releafpack - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/conference2023/reflection monthly 0.5 2023-08-09 https://www.dysunderstood.com/conference2023/community monthly 0.5 2023-08-08 https://www.dysunderstood.com/conference2023/mercedesanddanielakerr monthly 0.5 2024-12-19 https://www.dysunderstood.com/conference2023/parenthood monthly 0.5 2024-12-21 https://www.dysunderstood.com/conference2023/nursemates monthly 0.5 2023-08-01 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/cc3f39e3-e0cf-496f-a43f-9f553654dc66/NSM-logo-white.png Conference 2023 - Giveaway: Nurse mates - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/conference2023/welcome monthly 0.5 2024-12-21 https://www.dysunderstood.com/conference2023/drpeterrowe monthly 0.5 2024-12-21 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/73f8d32f-047d-495f-9e67-2e9703f81b91/IMG_1579.JPG Conference 2023 - Decades of Dedication - A conversation and Q&A with Dr. Peter Rowe: a world-renowned physician specializing in the treatment of ME/CFS, dysautonomia, and related illnesses, including Long COVID. https://www.dysunderstood.com/conference2023/shooforgood monthly 0.5 2023-07-24 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/3ce6f896-3459-4cd3-a711-980dbaeeff4d/Screen+Shot+2023-07-06+at+1.35.00+PM.png Conference 2023 - Giveaway: Shoo For Good - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/374bff2c-5728-4d5e-82d9-bf700a6f2784/Screen+Shot+2023-07-06+at+1.37.23+PM.jpg Conference 2023 - Giveaway: Shoo For Good - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.dysunderstood.com/podcast daily 0.75 2024-10-03 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/a3535c44-b1b6-4ec3-b0f8-b6cef15b6e83/DYSUNDERSTOOD-Pod+2.JPEG https://www.dysunderstood.com/home daily 1.0 2025-01-03 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/a3535c44-b1b6-4ec3-b0f8-b6cef15b6e83/DYSUNDERSTOOD-Pod+2.JPEG https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/283cf10d-bf77-458a-aa6a-c39c63973f82/_L3A7385.jpg Home - “the voices of those living with complex chronic illness deserve to be heard, amplified, and believed.” — Ella Eastin https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c31129db-9e38-4158-8eba-216d075fa515/conference+mirror https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/cc3f39e3-e0cf-496f-a43f-9f553654dc66/NSM-logo-white.png Home https://www.dysunderstood.com/about daily 0.75 2025-01-03 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1618511387030-5LI1E5QMVTQ2RY9S00A4/20140228_Trade+151_0046+1.jpg About https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1618511440608-5BVMHVN4WR2I9YQV1WWR/Aro+Ha_0010+1.jpg About https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1618511467879-K5J9BYNACHJVDV3BNSFU/Aro+Ha_0387+1.jpg About https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1618511743693-J3A8OYH6X8C7RXNU5K0J/20140301_Trade+151_0124+1.jpg About https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/5c3bf75f-61fc-4e9c-9da2-ef2344270dcc/_L3A8945.jpg About - Founder. Hi, my name is Ella Eastin. Most people know me for my athletic achievements in the sport of swimming. While, yes, I am a 4x American record holder, 12x NCAA National Champion and 5x USA Swimming National Team member, these accomplishments account for a small part of my identity. I created dysunderstood to open up about my health challenges, including a battle with dysautonomia and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) after a COVID infection, that drastically changed the trajectory of my life. My hope is not that dysunderstood will leave me more recognized than before, but lead to greater recognition of a whole community- those battling dysautonomia, chronic illness, and disability. I wanted to create a place that allowed those of us with dysautonomia to have a voice. People deserve to tell their story the way they want it to be told. And our audience deserves to hear our stories from the source. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/20c9261c-73a6-4222-92c5-4b1ae060ec28/Dys-Dandalion-Graphics-random.png About - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/1660156089124-3SX15Y9FKMW4228DFIKX/unsplash-image-sfL_QOnmy00.jpg https://www.dysunderstood.com/contactus daily 0.75 2022-06-03 https://www.dysunderstood.com/work-with-me daily 0.75 2022-08-02 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/b0b48e7c-8959-4c89-9d38-40580898ba04/_L3A8194.jpg Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c3c67429-9f8c-4b12-9468-0aec8fdc5869/2045-42a-20210618_DSG_DAY_2_08_SWIM_14547-RGB-1.JPG Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/62b6e1b0-14e2-48ad-ba90-59637da1a768/Ella-Eastin-By-Jack-Spitser-CD8I7912.jpg Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/9ad9bd20-f4d5-4786-a2de-d7046c580be3/Screen+Shot+2022-01-04+at+5.19.47+PM.png Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/bddf20a0-f92f-4b51-a17f-abbedca702cc/IMG_4969.JPG Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/675cbeb6-01b1-4982-b4b9-ac0b7bb17d41/IMG_4047.jpg Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/c4b1d316-ad40-4ca1-9932-6a0592b40dff/IMG_9260.JPG Work with me https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/2c75d850-99ad-4713-a44e-7c9818cbf6b2/20160321_SMM_Eastin-Ella-and-Emily-on-cooler-summer-league-2003.jpg Work with me https://www.dysunderstood.com/partners daily 0.75 2024-12-07 https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/b2440501-c1ff-4628-987b-448add83528b/Dys+socks+nursemates.jpg Partners - partner in health(care) Nurse mates® Discount Code: DYS20 for 20% off https://images.squarespace-cdn.com/content/v1/6214720571d00e605caac42e/ef7be86e-ce33-4054-89b8-0db872c884c2/IMG_3916.jpg Partners - For all your SALT needs. 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