Founder.

Hi, my name is Ella Eastin. Most people know me for my athletic achievements in the sport of swimming. While, yes, I am a 4x American record holder, 12x NCAA National Champion and 5x USA Swimming National Team member, these accomplishments account for a small part of my identity.

I created dysunderstood to open up about my health challenges, including a battle with dysautonomia and chronic fatigue, that drastically changed the trajectory of my life.

My hope is not that dysunderstood will leave me more recognized than before, but lead to greater recognition of a whole community- those battling dysautonomia, chronic illness, and disability. 

I wanted to create a place that allowed those of us with dysautonomia to have a voice. People deserve to tell their story the way they want it to be told. And our audience deserves to hear our stories from the source.


The Dandelion Logo.

Dandelions are a symbol of strength, healing, hope, and perseverance- representative of everything that is required to live fully with chronic illness.

As the petals fall off a dandelion and blow in the wind, similarly, the message of dysunderstood will spread, land in new places and continue to grow.


Dysunderstood in the media

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Dysunderstood in the media -

  • Dysunderstood in the media

  • Nurse Mates Feature

    Check it out here!

  • PodcastDX

    Ella discusses her journey to a diagnosis and talks about her motivation to become a physician, develop dysunderstood and increase awareness of dysautonomia, ME/CFS, and more in this episode.

  • Gales- your story blog

    Read about Dysunderstood’s background story in this interview.

  • Dysautonomia International Conference 2022

    Our founder, Ella, spoke with the Vitassium team at their live event.

  • Alete Nutrition Blog

    You can read it here!

Learn more about dysautonomia from these sources with a wealth of information and resources!